RESOURCES

CCF'S 10 FACTS ABOUT PEDIATRIC HCM

In honor of September's "Children's Cardiomyopathy Awareness" Month, the Children's Cardiomyopathy Fund provided the below fact sheet to the film’s producers.

1. Cardiomyopathy is a chronic disease of the heart muscle that affects the heart's ability to pump blood.

2. There are five different forms of cardiomyopathy. (Hypertrophic appears in THE LAST WHISTLE.)

3. Cardiomyopathy can affect any child regardless of race, class, or gender.

4. Symptoms vary, from trouble breathing, to fatigue, to exercise intolerance. Sometimes there are not obvious symptoms.

5. Cardiomyopathy is usually genetically inherited, but may also be caused by viral infection or cancer treatment.

6. There is no known cure, but many treatments have been developed to control the effects.

7. Cardiomyopathy is the leading cause of heart transplants for children over one year of age.

8. Every year, 7,000 children in the US will have sudden cardiac arrest, many of which are caused by CM.

9. Many children with Cardiomyopathy face limited physical and recreational freedom. 

10. A specialized treatment plan is usually necessary, and there is not a single best way to currently treat the condition.

In an effort to help increase awareness about hypertrophic cardiomyopathy and sudden cardiac arrest, the American Heart Association provided the below description to the film’s producers.

According to the American Heart Association, hypertrophic cardiomyopathy (HCM) occurs if heart muscle cells enlarge and cause the walls of the ventricles (usually the left ventricle) to thicken.

Usually inherited, HCM is caused by a change in some of the genes in heart muscle proteins. The condition is a common cause of sudden cardiac arrest in young people, including young athletes, and can affect people of any age.

 

Symptoms can include chest pain, dizziness, shortness of breath or fainting.

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© 2018 by Rob Smat

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